On Monday new central line was placed and my PICC was removed. Emily and the boys visited in the morning. I'm not sure on that last detail, but we'll roll with it. I wasn't allowed to eat or drink before the central line was placed. This created a situation where I didn't eat or drink for almost 24 hours. That cost me a pound or two. The best part of the day was probably the fentanyl and versed, the waking sedation used for the placement of the central line. That stuff is awesome. It's like being given a hot bath and a massage at the same time. All of your muscles relax and all of your thoughts float away. Good stuff. I don't remember much about Monday but Monday was a good day.
On Tuesday Emily worked. Around 3 they administered chemo via spinal tap. Then I was discharged. Scott Ashby provided escort services home. For some reason I hadn't thought to ask him for a ride. Luckily a group e-mail brought my situation to Scott's attention in time for him to save Emily a trip. Scott works in SLC but lives very close to us. It was pretty funny. I played a new version of the "which superhero power would you choose" game with him. I won't go into it, it's very detailed and the details aren't fully hammered out. Scott was my test subject for the game. He played along and helped me to further narrow the rules of the game. I'll write them down sometime so that others can add to the game. Tuesday was a good day.
The bit about the superhero game reminds me of two topics I've considered writing more about. One is a thought I had which I think would make for an excellent novel. The premise being that we're all powerful beings who have plugged into this life/world as part of a game that limits and thus amuses us. Everyone knows that if you were all powerful you'd get bored; It'd be even worse if you were all knowing. So perhaps you'd virtually cripple yourself and live out a life in a false linear existence as a form of entertainment. It'd certainly add variety to your existence. Perhaps I'll elaborate another time. My brother has heard the one hour version of this idea more than once.
The other topic is in regards to my parents and the idea of living life with an eye to the journey versus an eye to the destination. My father seemed to always be hoping to achieve something, he rarely seemed content with a given moment. My mother, on the other hand, seemed happy most of the time. She usually focused on the moment and the people around her. When my father passed, I felt sad for him. When my mother passed, I didn't feel sad. It's taken me a long time to be able to succinctly articulate why I felt how I felt, but this is why: My mother enjoyed the journey, she lived a happy life and died. My father didn't enjoy the journey, he lived a strained life and died. I was sad because he'd largely missed his opportunity to smell the roses. There was no reason to feel sad over the death of my mother, other than selfishly. She had a wonderful life and was a beacon of happiness and hope in the lives of those who knew her.
On Wednesday I recovered at home. I couldn't exercise, having recently had the spinal tap. Emily had the day off. Jonas went with Andrew to an event where he played with and programmed Lego Mindstorms, now he wants some. Max, Emily, and I spent most of the day playing games. I can not really remember much of yesterday. I'm really tired and my brain is giving out in a big way right now. It was a good and fun day. I am always happy at home. Alright, I'm cashing out on Wednesday.
Today Emily spent the day at home again, which was awesome. The boys went and played with Bethanie and a cousin from 10 to 5 at Emily's parents' house. Emily left at 5 to visit her parents for a meal and to pick up the boys. In between 10 and 5 we had a tasty lunch, exercised, talked with my sister Jennifer for 2 hours, went to AF for a CBC, picked up some prescriptions, and generally had a good time. It's been another good day.
On the medical front, if all goes well, I'll be looking at proceeding with the bone marrow transplant in 3 to 5 weeks. In the meantime I will try to keep everyone up to date. For the next two weeks we'll be in wait-and-see mode.
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