Monday, March 26, 2012

Continued Confusion

Today was another confusing day.  LDS hospital called me at 8:45am to setup an appointment for a bone marrow aspirate at 12:45pm.  At 12:45pm we showed for the aspirate.  We waited for two and a half hours, the procedure began at 3:15, we were on the road by 3:30.

The PA that performed the procedure was confused as to why we were doing the procedure.  He reconfirmed with the physician that they really wanted it done.  There are blasts in my blood.  That indicates that the leukemia is surging.  We don't have it beat, we need to do more chemo.  That's not news.  Why are we looking at leukemia by way of a biopsy when we know that what we'll see is leukemia?  This is an $8,000 procedure; it is also quite painful.  So the biopsy is out of the way.

The question remains, why did we do the biopsy?  The results won't be back for at least 48 hours.  Never the less, they've gone and scheduled an appointment with me for tomorrow to discuss further treatment with a physician.  I'm so confused.  Why would we discuss further treatment before getting the results from the biopsy back?  Isn't that the point of the biopsy, to know what we should do next based on empirical data?  I'm afraid the meeting tomorrow will be a bit awkward.  I don't intend to let these questions go unanswered.  I'm out time, money, and pain.  They better have good reasons for what they've done.  If not, I'm going to quit trusting them and start demanding solid reasons up front.

Everything has been good, even with the confusing medical situation.  I've had a lot of fun with Emily and the boys and we continue to enjoy our time together.  Right now Emily is napping.  She's probably tired from making me so many tasty meals.  I haven't done well with eating over the past 5 days but Emily has been great about trying to feed me.

That's the update for today, it has been a good day.  They did hit a nerve when first attempting the biopsy, which means they had to go in twice; that's 4 out of 6 times that I've been unlucky with that.  Still, pain and all, it has been a good day.  The Lidocaine is wearing off, I bid you adieu.

Picture of the day.  Max during his brief stint, 2 and a half years ago, as a newsie; the money was good but the hours were too long:


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