First, the medical update. I was told that when my platelets hit 65 and neuts hit 1000 they would begin round 2 of the chemo. Yesterday my platelets were 58 and my neuts were 900; so close. The trend is favorable, my platelet count has increased by an average of 7 points each day over the past 5 days. As of today, Tuesday, my platelets should now be at or above 65. Oddly, my favorite physician suggested yesterday that I should do another bone marrow biopsy today so they could better understand the morphology of my leukemia. Now, that is a literal pain in the ass and it doesn't make any sense to me. The information was relayed to me through a hospital coordinator. I expressed my confusion, considering that we're only a week late and the same physician suggesting the bone marrow biopsy had mentioned that being two weeks late wouldn't be abnormal or a problem. The coordinator relayed my confusion to the physician; the physician responded by saying we should do another blood check on Wednesday.
The summary of my near future: I'll have a CBC done Wednesday. If that CBC indicates my platelets and neuts are at acceptable levels then I will be admitted on Friday for round 2 of chemo. If my CBC indicates poor blood chemistry we will do another bone marrow biopsy on Friday. I'm not sure what the morphology will tell them that is useful; especially when you consider that the only tool they have is chemo. No matter what they see they're going to throw more chemo at it. My suggestion is that they don't check my bone marrow until they believe I may actually be in remission. It isn't one of those things you should be checking just for giggles.
Sunday was relaxing and pleasant. Christy and Ryan visited for a couple of hours. Christy brought by some yoga magazines. Yoga is possibly my greatest resource in the struggle to maintain balanced physical health. Christy and Ryan are thoughtful friends who've done much for us. When I start my cult they'll definitely be invited to live in the commune's main building with me.
Monday was also nice. Max was extra difficult. Anything I like, he disliked. Anything I disliked, he loved. Max demonstrated his finest attempts at pointless antagonism. He never got the better of me but he tried, oh how he tried. Elliot, Jessica, and Lily visited for lunch. The food was good, the company was better. They left just before Jonas came home. Jonas learned, just after coming home, that his fish had died days earlier. There were tears, a fish was flushed down the toilet, and Emily was really grossed out.
Today Emily is home with me and we're spending the morning the usual way, teaching Max. It has been a nice morning. We have no plans. I love days with no plans; Emily does not. Max has finished learning his threes today, times tables are fun. I'll work on a plan for the day, for Emily's sake. It appears that we'll have a very nice day.
The picture of the day: An older picture of Elliot, Jessica, and Lily.
Lily is SO tiny in that picture!
ReplyDeleteI am glad you got out of having the bone marrow biopsy. Hopefully tomorrow brings great news. Keep us informed so that we can help with the boys.
Like Emily, I don't do well with days without a plan, or something to look forward to. If you guys are ever bored give us a call. I understand if you are getting sick of us, but we can't get enough of you guys. We consistently have the most fun out of our week at your house.
Thanks for inviting us to live in your compound :) I think it's a grand idea! I am ordering some yoga bolsters & wedges, so I'll be sure to get a set to you! If you want me to give you any sequences or restorative poses, I'd be happy to come over-- give me a text! I'm usually free 12-4 pm...
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