Ryan and Christy visited with me on Friday. They gifted me two yoga bolsters. For those who don't know, I didn't, yoga bolsters are very firm pillows that don't change shape easily. They're built to help people do certain yoga poses with more comfort. I'm using them to help prevent bruising. Christy and Ryan couldn't have had better timing. My platelets were 38 on Friday, 21 on Saturday, and 13 this morning. I have point pain and bruising cropping up all over my body. But I've been using the bolsters and they're helping a lot. Aside from the bolsters, which I realize I'm pretty hung up on, we had a pretty entertaining conversation that lasted until both Ryans had a desperate need to urinate. I think we made it over two hours. Friday was a good day.
Emily arrived Saturday morning at 9:40. That's quite early. Thanks go to Jessica and Elliot who took our boys for the day. Emily and I had a great day. We talked, pretended to nap, ate hospital food, and visited with Gavan and Amy for a couple of hours in the afternoon. Saturday was a great day. There is absolutely nothing I enjoy doing more than spending time with Emily. She's so pretty, nice, and sweet. She even smells good. As an added bonus she does a wonderful job taking care of me, the boys, and all of our shared burdens. That's right folks, she is the whole package.
Scott Ashby visited for a few hours today. He offered me a break from hospital food. Today I had, for the second time, the Taco Bell Dorito's tacos. They're very tasty. We discussed all of the usual stuff then we had fun guessing at the myers-briggs personality types for various people.
It was awesome of Scott to take a big chunk out of his Sunday to be my only visitor. I think I would've slept through the day otherwise. I woke up this morning at 7:30 but didn't finish breakfast and get out of bed until 10. I kept laying down and closing my eyes. Even now, I'm standing while I type this, I keep closing my eyes. If I weren't standing there's no way I'd be able to stay awake long enough to type this post. I received two red blood cell transfusions and one platelet transfusion today.
My PICC, the central line in my arm, became compromised yesterday. So tomorrow they'll be pulling the PICC and placing the central in my chest. It'll be the same as the one I had last year. This needed to be done for the bone marrow transplant anyway. I think I'm also supposed to have a spinal tap tomorrow. The central line will likely hurt a good deal more than the spinal tap, if it's anything like it was the last time.
Sunday has been a good day. I feel pretty beat up and tired. Tomorrow looks like it'll be a bit rough. The silver lining for tomorrow is a visit from Emily and my boys.
I've been good with exercise and eating, despite being fatigued. I do wish I had more creative energy. There are quite a few things I'd like to do. Instead the day just slips by with the fatigue biting at me. Alas, these are the woes of a Ryan receiving chemo.
The picture of the day, baby Max and Jonas being cute:
I think I'm an INFJ. Let me know how tomorrow goes - we would love to come visit again sometime soon.
ReplyDeleteI may get to come home today, we'll see. Then it's less trouble for you to visit.
DeleteI'm a weak E at work and a weak I at home. My N and T are very strong and I'm a weak J. One day I'd like to be a P instead of a J, with age I'm becoming more of a P. As for the E/I situation, I'm happy with it the way it is. The NT isn't something I can do anything about. My mind has deeply rooted paths in the NT ways, and I like it that way.